Increasing community participation in data collection for positive change

Collecting data is incredibly important for researchers and organizations to do effective work in their communities, especially among vulnerable populations. Yet many face hurdles that complicate good data collection, such as mistakes by frontline data collectors, suspicion from community members, and difficulty communicating what the data will be used for. Increasing community participation in the process of data collection could help address these challenges.

To answer these questions, Matthews first completed interviews with Valley of the Sun United Way, ASU College of Health Solutions, and HOPE Network Promotores. He found that institutions wanted more information, and they wanted it to be accurate, simple, and concise. They also reported a desire for more success stories to show to donors. Community members on the other hand regarded data collection with suspicion and a fear of embarrassment; they didn't understand why or how their personal information would be used. Next, Matthews used this information to design two workshops on data collection and use. These workshops demonstrated that once a person better understands data, they realize how valuable it is for impact work, and they become interested in learning more. Finally, Matthews used these findings and reflections to create a toolkit for Valley of the Sun United Way.

Matthews suggests that institutions build into their plan a process to communicate to the community how data is collected and how it will be used and that they remain available for follow-up conversations about data to foster long-term relationships. He emphasizes that how non-profit and academic professionals work with vulnerable populations is just as important as the work they want to do and hopes his toolkit can be a useful resource in this regard. Matthews notes that this project affected him personally, helping him simplify and reframe the way he talks about data. He also believes that it will help community members take ownership of data collection in the future and help institutions strengthen their relationships with community members, ultimately building greater community resilience.